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About CMT

This section aims to give you all the information you could possibly need to understand Charcot-Marie-Tooth Disease, and, more importantly, to live with it successfully. 

We hope that this website answers most of your questions about CMT and living with it, but it is not designed to replace the relationship between you and your health care professionals.

We have taken every care to ensure that information on this website is correct, but we cannot take responsibility for incorrect entries.  There are constant changes and developments in medicine, research, and daily living issues, such as benefits.


Watch a video of our Patron, Professor Mary Reilly, talking about CMT on Youtube here

We'd also like to say that providing this website and the information within it isn't free.  It takes a fair amount of money each and every day to run this organisation to provide you with the best possible support and information.

If can donate, please use this button:


The majority of the medical information in this section of this website was taken from CMT: A Practical Guide, written by John Isitt and published in 2006.  All medical information in that publication was written with the active involvement of:

General medical and genetic advice on CMT

  • Professor Mary Reilly, Consultant Neurologist and Honorary Senior Lecturer, Centre for Neuromuscular Disease and Dept. of Molecular Neurosciences, National Hospital for Neurology and Neurosurgery and Institute of Neurology, London.

  • Dr David Hilton-Jones, Clinical Director of the Oxford MDC Muscle & Nerve Centre and consultant neurologist at the Radcliffe Infirmary and honorary senior lecturer in the University of Oxford.

  • Mary Davis, senior geneticist, University College London Hospital.  

Exercise and stretching

  • Gita Ramdharry, Research Physiotherapist at the Institute of Neurology, University College Hospital.

  • Liz Dewar, Senior Physiotherapist at The National Hospital for Neurology and Neuro-surgery, Queen Square, London.


  • Paul Charlton, Senior Orthotist at Peacocks Medical Group and Vice Chairman of the UK members section of the International Society for Prosthetics and Orthotics.

Occupational Therapy

  • Pip Wilford, Clinical Specialist Occupational Therapist, National Hospital for Neurology and Neurosurgery, London.

Healthy eating

  • Erin Dooley, Senior Neurosciences Dietitian at University Hospital Birmingham NHS Trust.

Surgery and anaesthetics

  • Mr Dishan Singh, Consultant Orthopaedic Surgeon, Foot and Ankle Unit, Royal National Orthopaedic Hospital, Stanmore, Middlesex.

  • Dr Michael Hetreed, Consultant Anaesthetist, Royal National Orthopaedic Hospital, Stanmore, Middlesex.


  • Richard Leigh, Head of Podiatry, Royal Free Hospital, London.








Date updated 30/08/2014

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