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How many times have you been asked – “what condition do you have” – only to receive a completely blank expression and the words “haven’t heard of that one!” when you tell them!
Even worse than that - what about when it happens when you’re at the doctors or at your neurologist’s clinic!
Awareness is important!
Wouldn’t it be wonderful if everyone – not just the medical profession – knew what Charcot-Marie-Tooth Disease is, like they do for other, rarer, conditions like Duchenne Muscular Dystrophy or Motor Neurone Disease.
Visit the awareness Resources page for downloadable posters to spread around wherever you go. A car sticker is an easy way of spreading awareness wherever you go!
MONEY IS ALSO IMPORTANT!
We all have a dream for the future of this organisation - the dream may be different for all of us. For some it may be the need for a cure, or a viable treatment, or better management options - all of which need astronomical amounts of money to fund the necessary research. For others, it may be that you could do with help NOW in applying for benefits, seeking funding for equipment or just general day to day support for coping with your life - a Support Worker service would provide such help - also requiring large and regular sustained giving.
GO TO www.cmt.org.uk/donate.php to find all the easy ways of making a one off, or regular donation to our cause.
If you scan this QR code with your SmartPhone (apps to do this are freely available) - you can make a simple donation by text to us. It's set to give £5, but don't worry, you can easily change the amount before clicking "send"!
What we MUST do is encourage people from outside of our membership to help with financial support - if you can help with that mission in any way, please let us know your ideas. Go to the Corporate involvement page if you work for a generous company, who might like to use us as their Charity of the Year!
Date modified - 21/05/2013