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Frequently asked questions
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Question: Are breathing problems common in people who have CMT?
Answer: No, only in a VERY small percentage of patients with severe CMT.
Question: What type of CMT is the most likely to have breathing problems connected with it?
Answer: Patients with major CMT involvement of the upper arms and neck.
Question: How important is it for people to have their breathing checked if they think they have a breathing problem?
Answer: They should at least have a consultation with a lung specialist.
Question: Can breathing problems in CMT be life threatening?
Answer: Yes, in advanced cases, the patient may need a breathing machine.
Question: If you think you have breathing problems and are going to have an operation involving anesthetic, how important is it to have your breathing checked BEFORE the operation? How about having it checked lying down? What should the person checking your breathing be looking for?
Answer: Definitely BEFORE surgery. They need to check vital capacity sitting and lying and look for major disparities. They also should be monitored closely after the operation.
