Topic: DLA to be axed and replaced by PIP

7 December 2010

The DWP have confirmed that disability living allowance (DLA) is to be abolished and replaced by a new benefit called Personal Independence Payment (PIP) in 2013/14. 

The decision was detailed in a consultation document ‘Disability Living Allowance Reform’  published on 6th December.  The document makes it clear that it is not a consultation about whether to abolish DLA and replace it with PIP – that decision and much else has already been made, or is still being worked on, by a secret group of ‘independent specialists in health, social care and disability’ – but only in relation to secondary legislation about the details of how the new system will work.


What’s staying the same

Many aspects of Pip are the same, or similar, to DLA.

For example, PIP will have two components, a mobility and a daily living component.

It won’t be means-tested or taxed and won’t depend on national insurance contributions.

You can claim in or out of work.

It will be a cash payment.

It will be payable to children and adults who claim before they reach 65 and can continue in payment beyond that age.

There will still be ‘special rules’ claims for people who are terminally ill.

Motability will still be ‘supported’ under PIP.


What’s changing

You will need to show that you have met the criteria for six months and are likely to meet them for a further six months before payment can be made.  For DLA the qualifying period is three months in the past and six months in the future.

There will be no more automatic entitlement for specific conditions or impairments, such as double amputees or people who are both deaf and blind.  This means that the long fought for automatic entitlement to higher rate mobility for severely visually impaired people, agreed in March 2009 and due to come into force in April 2011, will be very short-lived indeed.

There will only be two rates for the daily living component, compared to the three rates for the care component of DLA.  The PIP mobility component will have two rates as well.

There will be new criteria for qualifying for the mobility and daily living component.  According to the consultation document, the activities that are likely to be considered when assessing eligibility will include:

Getting around
Interacting with others
Managing personal care and treatment needs
Accessing food and drink

The document goes on to add that “Activities we could assess could include, for example, planning and making a journey, and understanding and communicating with others.”

There will be a new assessment system with ‘greater emphasis on objectivity and increased use of evidence’.  Most people will have to have a face-to-face assessment with an Atos health professional.  This seems likely to be an assessment on very similar lines to the work capability assessment for employment and support allowance, quite probably with some of the activities overlapping so that one medical will cover both benefits for some claimants.

More account will be taken of aids and adaptations.  The document gives the example of considering an individual’s ability to get about in a wheelchair rather than just their ability to walk. 

There will be a periodic review of all PIP awards, unlike the current DLA system which allows for indefinite awards with spot checks on just a small proportion.


What’s undecided

The coalition haven’t yet decided whether to apply some or all of the new system to children aged under 16.

They also haven’t decided whether the age limit for initial claims for PIP should rise in line with the increase in the state pension age once it is the same for men and women in 2018.

The coalition says it recognises the importance of DLA as a passport to things such as Warm Front grants and the Blue Badge scheme and that they will take this into account when designing PIP.  Worryingly, however, the document says that the current system of premiums linked to DLA is complex and confusing and ‘consideration is being given to what, if any, extra support may be needed for disabled people in universal credit.’


Overlap between PIP and ESA

The consultation paper points out that ‘people may undergo many different assessments’ for disability support, such as the assessment for ESA, and that the DWP will explore ‘whether it is possible to share information from other assessments and eliminate areas of overlap’

It seems very possible then, that the PIP assessment activities are being designed to fit, at least in part, with the new, harsher work capability assessment for ESA due to be introduced at the end of March 2011..

The higher rate of the mobility or ‘Getting around’ component of PIP, for example, may closely match the activity in the new WCA of ‘Mobilising unaided by another person with or without a walking stick, manual wheelchair or other aid if such aid can reasonably be used.’ 

People who cannot ‘mobilise’ more than 50 metres are eligible for the support group of ESA and this could form the basis of the PIP higher rate mobility component.  This is especially the case given the suggestion in the consultation document that the ability to use aids and adaptations such as wheelchairs should be taken into account  for PIP.

The lower rate of the PIP activity of ‘Getting around’ could very well overlap with the WCA cognitive and intellectual activity of  ‘Getting about’.

The PIP activity of ‘Understanding and communicating with others’ could relate very closely to two activities in the new WCA:  ‘Making self understood through speaking, writing, typing, or other means normally used.’ and ‘Understanding communication by both verbal means (such as hearing or lip reading) and non-verbal means (such as reading 16 point print) using any aid it is reasonable to expect them to use; unaided by another person.’

Another PIP activity, ‘Interacting with others’, may be assessed using the WCA activities of ‘Coping with social engagement due to cognitive impairment or mental disorder’ and ‘Appropriateness of behaviour with other people, due to cognitive impairment or mental disorder’.

Accessing food and drink under PIP might well relate to the support group activities of  ‘Conveying food or drink to the mouth’ and ‘Chewing or swallowing food or drink.’

The temptation to save costs by making the ESA and PIP criteria overlap, so that one medical covers two benefits in many cases, is one that we suspect the current coalition will find irresistible.


Who is most likely to lose out

We know that the aim of the coalition is to cut the cost of DLA by at least 20% through these ‘reforms’.  So who are most likely to be the losers when all current working age DLA claimants are forced to be reassessed starting in 2013/14?

With the daily living component being reduced to two rates, it seems likely that many people who receive the lower rate of the care component will be at risk.  This is strongly hinted at in the consultation document, which points out that it was originally estimated that the introduction of lower rate care would help 140,000 people but it is now received by 880,000 people

As we have already seen, it is also entirely possible that people who are unable to walk but who can use a manual wheelchair will lose their higher rate mobility.

Further than that, it is hard to even guess at who may lose out at this stage.  All we can be certain of is that hundreds of thousands of current DLA claimants will be the losers.

The consultation on this massive change to benefits for disabled people runs for a derisory 10 weeks, including Christmas and New Year.

You can download a copy of the consultation document from this link.

http://www.dwp.gov.uk/docs/dla-reform-consultation.pdf





Please do make your feelings known about these changes, if like me, you're worried about losing your independence with these changes.  I cannot imagine that the new assessment system will be able to take into account the weird and varied nature of CMT, despite it being incurable and progressive. 

We do need to make our feelings known NOW before it's too late.

Many thanks to Benefits and Work for sharing this information with us.

Karen

Karen Butcher
My office hours are Monday, Thursday and Friday from 9am to 3pm (less in school holidays)          Email- info@cmtuk.org.uk or phone 0800 6526316

Skype username:  cmtunitedkingdom

Re: DLA to be axed and replaced by PIP

Downloaded and being read.... this has been heading down the tracks toward us for some time, it has just picked up a bit of speed.
Can a group really be 'secret' and 'Independent', surely independence implies openness and accountability... Hmm!

Re: DLA to be axed and replaced by PIP

I am aware that wheelchair users can get assistance getting on busses, on trains, etc.  It's wonderful in theory.  However, I would like to see all those making the decisions on DLA and PIP Take a trip from a country village to London and back, then on a seperate day go shoppjng in tesco's and back by public transport, in a wheelchair.

This would have to be done without publicity or the public transposrt systems being pre-notified of this test. (preferably on a windy rainy day)

And to make this test closer to thw way it is; they should have their feet bound tightly with crape bandages over thorns.  After all, it's very different playing in a wheelchair and having to cope with constant pain.

I'm amazed that this power they have to make these decisions has blinded them to reality.

Garth

Last edited by Garth (08-12-2010 17:40:43)

I may be worse today then I was yesterday, but as I am better then I will be tomorrow I'll enjoy today.

Re: DLA to be axed and replaced by PIP

Are they saying that once you have used your PIP to overcome any disability, eg mobility aids etc. that you are then reassessed using those and that you might no longer qualify, or qualify on a reduced rate  ...  if you manage to qualify in the first instance.  There is an onus of responsibility for ATOS to get their assessments right. Why does that not fill me with confidence.

This is going to get messy.

Re: DLA to be axed and replaced by PIP

I've been getting quite confused about the change from DLA to PIP and although I can see how the old DLA system has a number of problems (the application process and assessment, to name two unwieldy and costly processes), I just see a new set of problems over the horizon. The cynic in me feels that this will help create a new layer of private enteprise for medical organisations like ATOS to make money which requires 'efficiency' and 'results'. To achieve this will require a large number of people to be removed from DLA/PIP and the problem as I see it is; will this be a fair process. History suggests that fairness is not achieved without transparency, scrutiny and external, independent checking - all costly and not in keeping with private enteprise. I also worry that in considering how few doctors have even heard of CMT, how are they supposed to assess us fairly? On another issue, as a public health advisor, I am seeing a constant trend in chronic conditions creating disabilities due to lifestyle and environment as well as reductions in infant mortality but higher levels of disability at birth. Resources getting less but need getting higher is a recipe for hard times ahead. No better time for us to have CMT UK there to support us and raise awareness.

Re: DLA to be axed and replaced by PIP

I don't know how good these online petitions are, but there is one being run on the petitiononline website. I think it was started by someone on the BBC Ouch! website messageboard.

http://www.petitiononline.co.uk/petitio … reform/569

here's what the petition says,

We, the undersigned, urge the Minister for Disabled People to recall the Public Consultation on Disability Living Allowance (DLA) reform, and to cease work on reform of this benefit, due to serious flaws in the consultation paper. As such, the consultation questions are deeply skewed and any answers will be likely to support wholesale reform. This is both unfair and unwise, and will cause hardship for many disabled people.

The case for reform has been criticized, and then completely demolished, by the various disability rights groups fighting reform. They accuse the DWP of building their argument without sufficient evidence. The claims that DLA can act as a barrier to work, in particular, are robustly questioned. Questions are also raised concerning the accuracy of the representation of supporting data. For example, the claim is made that DLA claims have risen by 30% in eight years - without accounting for population growth of 5% in this period, a pronounced demographic shift, and increased awareness of DLA.

Most devastating to the case for reform is the critique of proposed amendments, leading one to ask whether augmenting DLA might not be a better, cheaper way of improving employment opportunities, rather than launching an entirely new benefit. It would seem that the costs of such rebranding are only justified when savings are made by cutting the DLA caseload by 20%. This figure is, in and of itself, questionable – how is it possible to know that this many people can be removed?

The Personal Independence Payment (PIP) appears to be a case of cuts dressed as positive reform. Disability rights groups and charities have uniformly condemned the proposals, warning of dire consequences. The list of those affected includes: people who are mobile with aids; people with disabilities so severe that they are unable to be very active; care home residents; those who receive local authority care packages. Most other disabled people will suffer through needless reassessments upon the introduction of PIP, and re-testing every few years even when a condition cannot be treated.

There is a strong feeling amongst people with disabilities that the Coalition Government have declared war on us, with a continual ratcheting of pressure on us since the Emergency Budget in June 2010. Announcements on Employment and Support Allowance, Incapacity Benefit, and Disability Living Allowance have made us feel that the Government is scapegoating us and removing the support on which we depend. Iain Duncan-Smith’s comments to The Sun newspaper [01/12/2010) suggesting that Incapacity Benefit claimants were partly to blame for a large fiscal deficit caused by a recession, a bail-out of the banks and quantitative easing. Whilst there may be ways to improve DLA, they do not involve replacing it with a new benefit, and neither do they involve removing anyone from the claimant caseload.

Not sure if it will do any good. The Govt. have promised to bring back the No.10 Petitions and have promised to act on those that have most support, including debates in Parliament. It will be interesting to see how that turns out.

Re: DLA to be axed and replaced by PIP

http://labour-uncut.co.uk/2011/02/17/so … -disabled/
Not sure if the link will activate or you may have to copy and paste in browser address bar.

An extreamely well phrased article and I'm glad it points out that DLA can't be held accountable for people not working as it is awarded irrespectively of working or not.

There is a lot of publicity, and propoganda, about the abolishan(on/en?) of DLA both for and against it. Most of it is too deep for me to follow. However, one thing that angers me as much as anything else is the govenments predelection for false economy.

They want to save X amlount on DLA so they hire a private company to do the weeding. For a while the nation (of diabled bodies at least) is terrified as the butchers chop off our benefits. Thats costing a big chunk of the money they are supposeed to be saving. Then we find 80 - 90% of those axed benefits are reinstated on apeal; that cost another big chunk of what they are supposed to be saving. At the end of the day the government are paying a private company to terrify claiments and then put them back as they were!!!

Oh how clever... can I get shares in ATOS?

I may be worse today then I was yesterday, but as I am better then I will be tomorrow I'll enjoy today.

Re: DLA to be axed and replaced by PIP

If its ATOS  whos assessing for p.i.p, god help us all... my expereince was hellish.. doctor, retired chap, knew nothing about c.m.t couldn`t understand how i couldnt bend my legs.. i ended up dislocating the kneecap.. i got 12 out of 15points.. he said i didn`t need e.s.a because i could hold a light weight mac over my arms!!!... all docs are paid £70pp not to put people through!!

Re: DLA to be axed and replaced by PIP

I encourage you all to sign the petitions.  Surely, if 'People Power' can save the trees, surely it can save the people!

I may be worse today then I was yesterday, but as I am better then I will be tomorrow I'll enjoy today.

Re: DLA to be axed and replaced by PIP

Hello all.

I have just joined  CMT United Kingdom-what a fabulous site, it is really informative, with friendly members.  (Have spoke to Garth and Judith on here so far, who are really nice). These  DLA  cuts sound really bad!!!  I would like to learn more about all of the proposed changes to  DLA, so I know what to expect.  This PIP thing sounds really complicated too!

Currently, I am trying to find out more about all things  CMT.  I have type 1a.  I am hoping to go to the Convention in April so that I can develop knowledge and even help others in my community and family  to understand, as some people really don't understand!  My  CMT  seems to be getting progressively worse, which is really scary!.  Was hoping to chat with others who feel the same way, so maybe we could help each other.

I would gladly sign petitions, so will check where/how to do this, so that our disability rights are maintained and supported.  Also, I like to help others, as i know what it is like to fall and trip, it can really get you down...

.



Michala

Re: DLA to be axed and replaced by PIP

I do encourage everyone to keep an eye on the Benefits and Work website - www.benefitsandwork.co.uk - they are the source of all our information about DLA, ESA, PIP and all the other nonsense that the Government have in store for us.  They're completely unbiased and provide excellent guides to applying for the current benefits and for keeping us up to date on the changes to DLA.

You can join as an individual, if you can afford to, or if you'd like to access something specific, please email me (info@cmtuk.org.uk) for CMT United Kingdom's log-in details (I shouldn't share them, but why the hell not?) and you can use those.

If you're on Facebook, they also have a Facebook page and regularly share links to articles, petitions and useful resources that might help us fight these changes. 

Karen

Karen Butcher
My office hours are Monday, Thursday and Friday from 9am to 3pm (less in school holidays)          Email- info@cmtuk.org.uk or phone 0800 6526316

Skype username:  cmtunitedkingdom

Re: DLA to be axed and replaced by PIP

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