Topic: new today wanted to say hello!
Joined today as I am currently being looked at for cmt. i have a bone scan with dye next week, followed by a mri scan next week , had some blood taken and will see the consultant at the end of january for the results. i have had foot problems since a baby (talipes) but just seemd to progress sort of normally through childhood teens etc although i have never been able to run or do sport as flat feet! never seen any doctors about it, as i have epilepsy and that takes over my life in terms of seeing doctors and when i mentioned the pain in recent years etc they suggested that long term use of aed's can cause bone problems so have been taking iron for years. Just before xmas last i had enough of tripping , taking painkillers, no ability to walk any distance, continual pain in toes, calves, and popping sensation? in calves i went to my gp and said i needed to see somebody who dealt with pain or bones at the hospital as i could not at 45 yrs old stand this any longer as well as the epilepsy. he referred me and i got the appt with orthopaedic guy it came thro in 2 wks he came up with possible cmt and organised all these scans im going for. whoooah ive got that off my chest. thanks.............cold hand and feet are something i have had for as long as i can remember, wearing thicker socks doesnt help because finding suitable shoes is another issue! help!!