new today wanted to say hello!

Hi Hazel, welcome to the forum.

You have done the right thing in joining us, even if it's just to know that you are not alone.  Al our experiences may be different, some in minor way while others in major ways, however most of us know what you are going through to some degree.

The cold feet thing, I've heard of wearing extra thick socks or even two pairs but to me; well it feels the cold actually emanates from the inside!

I can't really imagine what it is like to have epilepsy and admire anyone who has to deal with it, I don't think I could.  In comparison, the continual pain of cmt is preferable in that at least I can bite down and fight it.

I'll keep the welcome short for now and have no doubt others will be along shortly to add theirs and some of their experiences.  I'll watch out for your posts and we'll chat some more on them.  Mean while, once again, Welcome and may the New Year bring you and yours some happiness and contentment.

Also, sorry to be a pain could i ask, does anybody experience like popping sensations in the calfs like bubbles under the skin or are these muscles contracting .   pain in my lower back from walking 'funny' also was a part of starting this process off.   i feel like i want my feet breaking and putting in casts to get some stability to walk that will take pressure of my back.  i know i have fractured toes self healed (or not) and do have a cyst in cuboid bone in ankle as i had a mri scan for bone density but nothing has been done about this cyst..  i saw a podiatry person ages ago who just gave me a set of shoe liners to help me walk better... they were not worth the material they were made of as they didnt help and pain still there - never heard any more , i just carried on and thought this is how people must struggle walking.

hi, wasnt sure to continue with the post here.   i thought i would up date you with my progress so far.  i went for the bone scan with dye which was ok on an open scanner last week.  today i went for the mri scan of my spine and couldnt do it , i didnt know i was claustrophobic but i cried when i was to be put in the drum head first .  they were good with me and suggested i get a sedative or something and they would rearrange an appointment but there was no nerves right up until going into the room until i lied on the slidey bed and was going to go in the drum.  even though they said it was open ended , i couldnt not for no one.   why am i still tearful about not doing it and why didnt i?  does anybody else worry in scanners    thanks

thanks garth,  i was fine waiting for the appointment,  it is not as if i didnt know where is was going and i knew the noise that they make (i have had one before on my head)  which is absoutely dreadful so had set myself up for that. now i think about it i was delayed going in because they had a fault on the machine so i had to wait an extra hour for the person in front of me to finish and the fault to be dealt with!!!   even then i laughed about that when i went in the room but the minute i got strapped down by the neck and was told i was going in head first and the whole of me was going in .......panic.....where did that come from?   my gp has left a prescription for 2 diazepan to pick up when my next appt comes through and said i should be fine with them.  why i never thought that my whole body was going in when it was a spine scan they were doing i dont know what i was thinking!!  it still makes me sick thinking about it though.  im glad its quite common though reading on about claustrophobia etc.