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Medical professionals
Because CMT is a long-term condition you are likely to come across a lot of healthcare professionals in your time.
In general, a neurologist – a doctor who specialises in understanding and treating problems of the nervous system (neurology) – should oversee your overall CMT healthcare and ideally you should see a neurologist once a year.
Health care professionals that have particular relevance to people with CMT include:
GP – general practitioner. Your family doctor is the gateway to all other health, and often, social services. All the following can be accessed via a referral from your GP.
Neurologists – specialists in nervous system disorders. In order to provide you with the best care, your neurologist should have an interest in peripheral nerve disorders. CMT United Kingdom can point you in the direction of a neurologist who has a particular interest in CMT. This may involve a journey to London, as the best are probably located at the National Hospital for Neurology and Neurosurgery, Queen Square, London.
Orthopaedic surgeons – surgeons specialising in correcting skeletal problems – including legs/ankles/shoulders etc. Your orthopaedic surgeon should specialise in ankle/foot surgery.
Physiotherapists (physios) – movement specialists. Many neurological departments have physios attached to them who specialise in treating neurological conditions – neuro-physiotherapists
Orthotists – specialist foot support manufacturers
Occupational therapists (OT’s) – independent living specialists
Chiropodists/podiatrists – foot care specialists
Paediatricians – child health doctors
