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Support

When you first contact CMT United Kingdom, the chances are that you have just been diagnosed with Charcot-Marie-Tooth Disease and are worried, scared and uncertain as to your future.

As far as we can, bearing in mind that we are not medically qualified, we will try to reassure you and provide you with basic information, by post or via this website, in order to allay your immediate fears.  

Most of us on the committee have CMT ourselves and firstly, will know what you are talking about, and secondly, understand exactly the problems that you’ll face.  Sharing an experience is often the best way of coming to terms with a particular problem, and having CMT is no different.

We are a membership-led organisation, and we would like to encourage you to join us.  

 

One of the organisation’s long term aims is to arrive at a point, in the future, where the medical profession are knowledgeable about CMT, and are therefore able to provide you with relevant and timely information and advice.  To this end, we mail periodically to neurologists around the country, and in the past, have mailed to every GP’s practice in the UK.  However, it is an uphill task, and your assistance is always welcomed (see Get Involved).