Every year during October, we increase our activities to spread the word as widely as possible throughout the UK about our charity and the condition of Charcot-Marie-Tooth.

What are we doing during Awareness Month?

Charcot-Marie-Tooth (CMT) is the ‘most common rare disease’, so we are trying to raise as much awareness of the condition and the charity as possible. In the UK, some 25,000 people are thought to have CMT, making it the most common inherited neurological condition, although many people have not heard of it.

During our awareness month, our aim is to reach out to the following people:

  1. the general UK public; a small percentage may not realise that they are living with CMT and may benefit from our help.
  2. those people who knowingly have the condition, but are unaware of the support our charity can give them.
  3. health professionals to make them more aware of the condition, so that they can help patients to get diagnosed quicker and gain faster access to any treatment or support.

 

What is Charcot-Marie-Tooth?

CMT isn’t a condition related to the teeth – Howard Tooth was one of the three doctors who first described the condition in 1886! CMT is a hereditary condition that damages the peripheral nerves. Because of the nerve damage, people living with CMT may find that their muscles become slowly weaker over the years, particularly in their hands and feet, and the sense of feeling can become dull or numb in the same areas. For more details about the condition, click here.

Health Professionals

If you are a GP or health professional and would like to find out more about CMT, we have a free GP information pack with evidence-based information about the condition as well as details of future professional conferences. Plus, we have a page with information dedicated to health professionals, including details of our GP training module – click here to take a look.
To request a free GP pack today, please do contact us – we are here to help.


Can you help us during October?

As a small charity, your help in reaching a bigger audience would be gratefully received. Here are 5 ways to consider if you would like to help us…

  1. Do you know anyone who is living with the condition?
    Please do consider passing on details about our charity. They can also contact us here to request a free awareness pack with details about coping with the condition and how our charity can support them.
  2. Is your GP aware of CMT?
    You can email your local GP with a link to this webpage so that they can become more aware of the condition. Your GP can also contact us to receive a free GP information pack.
  3. Donate!
    We are very grateful for any donation, however big or small, as without donations, our charity would cease to exist and we would not be able to offer support to all our members and health professionals. To find out how to donate, click here
  4. Can you help us spread the word?
    Feel free to follow us on social media and view all our posts on Facebook, Twitter and Instagram during our awareness month and beyond (using the campaign hashtag #CMTawarenessmonth). Shares are especially appreciated to spread the word further…
  5. Consider becoming a member.
    Our membership schemes are available to everyone affected by CMT in the UK; it only costs £27 a year to join. Click here for more information.


Thank you for taking the time to read about our aims during Awareness Month. We hope that you find this useful and if you are able to support us in any of the 5 ways above, it would make a big difference to our charity and our members – thank you.

CMT UK is part of the European CMT Federation.  CMT UK was one of the founding members of the European CMT Federation and continues to work closely with them.

Contact Charcot-Marie-Tooth UK today

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Last Updated: Wednesday 9th October, 2019