Welcome to Charcot-Marie-Tooth UK

CMT United Kingdom is the UK’s charity dedicated to supporting people living with Charcot-Marie-Tooth disease, the most common inherited neurological condition in the world, estimated to affect 1 in 2,500 people. We provide personal support, advice and information through; our help-line, email, Regional Support Groups, Facebook groups/page, website and publications, including a magazine (ComMenT) for members.

CMT-UK is an independent charity (registration number: 1112370).

Read our Coronavirus (COVID-19) update: Coronavirus – COVID-19.

We held our first ever virtual CMT UK conference in May this year – please click here to find out more.

CMT Awareness Month is happening in October.  Click here to find out our plans.


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CMT Kids

CMT Kids runs events for children with CMT.

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How we can help

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Last Updated: Wednesday 8th September, 2021