CMT Kids & Big Kids
Who are CMT Kids?
Our CMT Kids (ages 11–17) and Big Kids (ages 18–30) communities are all about connection, fun, and empowerment. Whether you’re navigating school, exams, friendships, sports, or adult life with CMT, you’re never alone.
We provide a safe space to share experiences, ask questions, and celebrate achievements together. Through events, online groups, challenges, and our annual activity weekends, we help young people and young adults feel supported, inspired, and connected to others who truly understand.
Whether you’re 5, 25, or somewhere in between, CMT Kids is a place where you’ll find friendship, support, and loads of fun.
Follow us on social media @CMTKidsUK for updates, inspiration, and community stories.
Big Kids (18-30s)
Growing up with CMT?
Our Big Kids group is for young adults navigating uni, jobs, relationships, and independence – all with CMT in the mix.
We meet up, share experiences, and (most importantly) have a great time together!
What We Do
Accessible Activity Weekends and Day Trips
Climbing, canoeing, zip-lining, and more, all adapted so you can join in the adventure. Keep an eye out for our day trips across the UK, suitable for the whole family.
Online Meetups
Chat, share experiences, and connect with other young people who understand
Information and Advice
From tips on living with CMT to just having a laugh with mates, we’re here for you.
We know that young people with CMT often rely on a network of parents, carers, and teachers. Our support section includes resources and guidance to help them understand and manage CMT effectively.
Support for Parents
Advice on daily life, managing appointments, navigating benefits, and emotional support.
Support for Carers
Guidance on caring for someone with CMT, managing mobility needs, and staying informed about new treatments or research.
Support for Teachers
Tips and tools for adapting lessons, supporting physical needs, and creating an inclusive learning environment.
CMT Kids UK
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🚨 Booking for our 2026 CMT Big Kids Weekend opens at 11am TODAY! 🚨![]()
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📅 02/10/26 - 05/10/26![]()
📍 Avon Tyrrell, New Forest![]()
👥 18 - 30 year olds![]()
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Keep an eye on your emails for the booking form, or drop us a message to get yours 👀![]()
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To secure your place, we need:![]()
✅ Your completed booking form![]()
✅ A £50 non-refundable deposit![]()
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Places are first come, first served and we sold out in just a couple of weeks last year![]()
We’ve increased capacity for 2026, but if you’d like to join us, please get booked in ASAP!![]()
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The total cost for the weekend is a minimum £150 donation, which includes:![]()
🏡 3 nights accommodation![]()
🍽 All food![]()
🎯 All activities![]()
🧗 All equipment needed for the weekend![]()
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Please note:![]()
• Payment plans are available on request, just email cmt.office@cmt.org.uk![]()
• The £150 total includes your initial £50 deposit![]()
• The remaining £100 payment and a medical form will be required closer to the event![]()
• Deposits are non-refundable, and refunds for the full cost can only be offered if we are able to fill your place![]()
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We can’t wait to see you all for another amazing weekend! 💙
That’s a wrap on #MoveAMileADayInMay 2026 🎉![]()
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A huge THANK YOU to everyone who took part, donated, shared posts, cheered others on, and helped spread awareness for Charcot-Marie-Tooth disease this month!![]()
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There’s still time to donate if you’d like to support the campaign 👉 cmtunitedkingdom.enthuse.com/pf/mamadim26![]()
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Thank you again from all of us at CMTUK & CMT Kids!
🚨 SAVE THE DATE 🚨![]()
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Mark your calendars,![]()
Set your alarms,![]()
Tell your friends.…![]()
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Booking for our 2026 Big Kids Weekend opens at 11.00am on Monday 1st June 🎉![]()
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Keep an eye out on Monday for an email with the registration form attached, or drop us a message from 11 onwards and we’ll send it over!![]()
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Last year we completely sold out in just a couple of weeks, so make sure to get your responses in asap 👀![]()
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🧗 18 - 30s activity weekend![]()
📆 02/10/26 - 05/10/26![]()
📍 Avon Tyrrell, New Forest![]()
💷 £150 (including a £50 deposit)![]()
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Places are first come, first served and will only be secured once we have received a completed registration form and the £50 non-refundable deposit![]()
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Who’s joining us?!
⏰ Last chance to book! ⏰![]()
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Booking for our CMT Kids family day at Magna Science Adventure Centre in Rotherham closes at MIDDAY tomorrow (29th May) 🎉![]()
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It’s the perfect opportunity for children, young adults, and families living with CMT to get together, have some fun, explore, and spend time with people who truly understand! ![]()
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Big kids, grandparents, siblings… everyone is welcome 🙌 ![]()
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To help make the day more accessible, we’ll be subsidising tickets for families booking as part of our group ![]()
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Check your emails for the registration form, or drop us a message and we’ll send it over 😊 ![]()
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All forms must be submitted by midday on 29th May, and as tickets are booked in advance as a group, we unfortunately can’t offer refunds for cancellations ![]()
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Please note: this is a family meet-up and not organised childcare ![]()
Parents and guardians remain responsible for their children at all times, and anyone under 16 must attend with a responsible adult ![]()
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We can’t wait to see you there! ![]()
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#charcotmarietoothdisease #cmtuk #cmtkids
We had a fantastic time at the CMTUK annual conference a few weeks ago 🙌![]()
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It was great to see so many big kids in attendance, hear about the latest CMT updates, and learn from the amazing speakers!![]()
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Sam, Sophie, and Vicky shared what they’ve been working on over the past year - including highlights from our sold-out 2025 Big Kids weekend, our new safeguarding and booking processes, reintroducing our family day trips, and they even announced our upcoming events 👀![]()
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Bring on next year’s conference!![]()
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#charcotmarietoothdisease #cmtuk #cmtkids
Discover more
About CMTUK
Discover who we are, what CMTUK stands for, and how we support people living with Charcot-Marie-Tooth across the UK.
Research
Explore the latest CMT research, clinical trials, and how we’re driving progress toward better treatments and understanding.
Members
Join our community for access to resources, support networks, events, and exclusive member benefits — all on a donation basis.
Your support keeps CMTUK going
CMTUK is a donation-based charity. We don’t receive government funding – everything we do is made possible thanks to the generosity of our community. Every pound helps us provide vital support, raise awareness, and fund research for people living with Charcot-Marie-Tooth disease.