CMT Kids & Big Kids
Who are CMT Kids?
Our CMT Kids (ages 11–17) and Big Kids (ages 18–30) communities are all about connection, fun, and empowerment. Whether you’re navigating school, exams, friendships, sports, or adult life with CMT, you’re never alone.
We provide a safe space to share experiences, ask questions, and celebrate achievements together. Through events, online groups, challenges, and our annual activity weekends, we help young people and young adults feel supported, inspired, and connected to others who truly understand.
Whether you’re 5, 25, or somewhere in between, CMT Kids is a place where you’ll find friendship, support, and loads of fun.
Follow us on social media @CMTKidsUK for updates, inspiration, and community stories.
Big Kids (18-30s)
Growing up with CMT?
Our Big Kids group is for young adults navigating uni, jobs, relationships, and independence – all with CMT in the mix.
We meet up, share experiences, and (most importantly) have a great time together!
What We Do
Accessible Activity Weekends and Day Trips
Climbing, canoeing, zip-lining, and more, all adapted so you can join in the adventure. Keep an eye out for our day trips across the UK, suitable for the whole family.
Online Meetups
Chat, share experiences, and connect with other young people who understand
Information and Advice
From tips on living with CMT to just having a laugh with mates, we’re here for you.
We know that young people with CMT often rely on a network of parents, carers, and teachers. Our support section includes resources and guidance to help them understand and manage CMT effectively.
Support for Parents
Advice on daily life, managing appointments, navigating benefits, and emotional support.
Support for Carers
Guidance on caring for someone with CMT, managing mobility needs, and staying informed about new treatments or research.
Support for Teachers
Tips and tools for adapting lessons, supporting physical needs, and creating an inclusive learning environment.
CMT Kids UK
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CMT Kids and Big Kids in the UK
Part of the CMTUK Family!
There’s more to life than our disability💪
From campfires to climbing walls, our activity weekends are certainly something to remember!![]()
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#cmtkids #CMTUK #charcotmarietooth #september
Who’s ready to be back on the Bendrigg Trust zipline? 🙋👀![]()
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We can’t wait to see you there in November!![]()
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#charcotmarietoothdisease #zipline #cmt #cmtuk #cmtkids
We would like to say a huge CONGRATULATIONS to all those collecting GCSE results today 🥳![]()
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Well Done, Everyone!!
A huge good luck and congratulations to all those receiving A-Level results today!![]()
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Whatever the outcome, you got this 👏
There’s not long now until our next CMT Big Kids Weekend - and we can’t wait!![]()
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Our leaders are busy working and planning behind the scenes, but we want to know…![]()
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What’s your favourite memory from one of our activity weekends or day trips? ![]()
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Let us know in the comments 👀⬇️![]()
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#cmtuk #cmtkids #charcotmarietoothdisease #cmt #activityweekend
Discover more
About CMTUK
Discover who we are, what CMTUK stands for, and how we support people living with Charcot-Marie-Tooth across the UK.
Research
Explore the latest CMT research, clinical trials, and how we’re driving progress toward better treatments and understanding.
Members
Join our community for access to resources, support networks, events, and exclusive member benefits — all on a donation basis.
Your support keeps CMTUK going
CMTUK is a donation-based charity. We don’t receive government funding – everything we do is made possible thanks to the generosity of our community. Every pound helps us provide vital support, raise awareness, and fund research for people living with Charcot-Marie-Tooth disease.