CMT Kids & Big Kids
Who are CMT Kids?
Our CMT Kids (ages 11–17) and Big Kids (ages 18–30) communities are all about connection, fun, and empowerment. Whether you’re navigating school, exams, friendships, sports, or adult life with CMT, you’re never alone.
We provide a safe space to share experiences, ask questions, and celebrate achievements together. Through events, online groups, challenges, and our annual activity weekends, we help young people and young adults feel supported, inspired, and connected to others who truly understand.
Whether you’re 5, 25, or somewhere in between, CMT Kids is a place where you’ll find friendship, support, and loads of fun.
Follow us on social media @CMTKidsUK for updates, inspiration, and community stories.
Big Kids (18-30s)
Growing up with CMT?
Our Big Kids group is for young adults navigating uni, jobs, relationships, and independence – all with CMT in the mix.
We meet up, share experiences, and (most importantly) have a great time together!
What We Do
Accessible Activity Weekends and Day Trips
Climbing, canoeing, zip-lining, and more, all adapted so you can join in the adventure. Keep an eye out for our day trips across the UK, suitable for the whole family.
Online Meetups
Chat, share experiences, and connect with other young people who understand
Information and Advice
From tips on living with CMT to just having a laugh with mates, we’re here for you.
We know that young people with CMT often rely on a network of parents, carers, and teachers. Our support section includes resources and guidance to help them understand and manage CMT effectively.
Support for Parents
Advice on daily life, managing appointments, navigating benefits, and emotional support.
Support for Carers
Guidance on caring for someone with CMT, managing mobility needs, and staying informed about new treatments or research.
Support for Teachers
Tips and tools for adapting lessons, supporting physical needs, and creating an inclusive learning environment.
CMT Kids UK
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Did you know that each place on our CMT Kids & Big Kids activity weekends costs around £500? ![]()
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These weekends give children and young people living with CMT the chance to build confidence, make friendships and try new activities in a supportive environment - creating memories that really do last a lifetime!![]()
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We massively subsidise these costs for participants and their families to help make the weekends as accessible as possible, which is why fundraising through #MoveAMileADayInMay is so important 🙌![]()
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Every donation helps us continue providing these incredible experiences!![]()
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There’s still time to get involved, move your mile, and support the campaign 👣![]()
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Donate here 👉 cmtunitedkingdom.enthuse.com/pf/mamadim26![]()
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#charcotmarietoothdisease #activityweekend #cmtuk #cmtkids #fundraisingchallenge
It’s been amazing to see so many people getting involved in #MoveAMileADayInMay 💙![]()
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From walking and rolling, to cycling, gym classes, swimming and so much more… every mile moved is helping support people living with CMT across the UK!![]()
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Thank you to everyone who has already taken part, donated, shared posts or cheered others on - the support has been incredible to see 🙌![]()
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And the best part? It’s not too late to join in! Every mile and every donation makes a difference![]()
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Donate or get involved here 👉 cmtunitedkingdom.enthuse.com/pf/mamadim26![]()
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#cmtuk #charcotmarietooth #disabilityawareness #fundraisingchallenge
💙💙💙Living with CMT can affect more than just physical health![]()
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Managing symptoms, appointments, fatigue, mobility challenges, work, school, and everyday life can all take a toll on mental wellbeing too![]()
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That’s why having the right support around you matters!![]()
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At CMTUK, we offer a range of support services for people living with CMT and their families, including support groups across the UK, our helpline, and dedicated communities for younger members through CMT Kids UK and Big Kids![]()
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Connecting with others who understand life with CMT can make a real difference, whether you are looking for practical advice, reassurance, or simply people who understand![]()
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If you or someone you know could benefit from support, you can find out more at cmt.org.uk or ring our helpline on 0300 323 6316, Monday - Friday, 09:00 - 14:00![]()
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#mentalhealthawarenessweek #cmtuk #charcotmarietooth #disabilitysupport
Booking is now OPEN for our CMT Kids family day at Magna Science Adventure Centre in Rotherham on Saturday 6th June, 2026 🎉![]()
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It’s the perfect opportunity for children, young adults, and families living with CMT to get together, have some fun, explore, and spend time with people who truly understand!![]()
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Big kids, grandparents, siblings… everyone is welcome 🙌![]()
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To help make the day more accessible, we’ll be subsidising tickets for families booking as part of our group![]()
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Check your emails for the registration form, or drop us a message and we’ll send it over 😊![]()
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All forms must be submitted by midday on 29th May, and as tickets are booked in advance as a group, we unfortunately can’t offer refunds for cancellations![]()
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Please note: this is a family meet-up and not organised childcare![]()
Parents and guardians remain responsible for their children at all times, and anyone under 16 must attend with a responsible adult![]()
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We can’t wait to see you there!![]()
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#charcotmarietoothdisease #cmtuk #cmtkids
We’re heading to the Magna Science Adventure Centre in Rotherham on 6th June 2026 – and you’re invited!![]()
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It’s the perfect opportunity for children, young adults, and families living with CMT to get together, have some fun, explore, and spend time with people who truly understand 🙌![]()
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Big kids, grandparents, siblings… everyone is welcome!![]()
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To help make the day more accessible, we’ll be subsidising tickets by 10% for families booking as part of our group![]()
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This is a relaxed family meet-up, not organised childcare, so parents and guardians will be responsible their children at all times![]()
(Under 16s must come with a responsible adult)![]()
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We’ll share the registration form soon so you can grab your spots![]()
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For now, save the date! We’d love to see you there 🎉
Discover more
About CMTUK
Discover who we are, what CMTUK stands for, and how we support people living with Charcot-Marie-Tooth across the UK.
Research
Explore the latest CMT research, clinical trials, and how we’re driving progress toward better treatments and understanding.
Members
Join our community for access to resources, support networks, events, and exclusive member benefits — all on a donation basis.
Your support keeps CMTUK going
CMTUK is a donation-based charity. We don’t receive government funding – everything we do is made possible thanks to the generosity of our community. Every pound helps us provide vital support, raise awareness, and fund research for people living with Charcot-Marie-Tooth disease.