The EURO-NMD Webinar Series on Charcot-Marie-Tooth Disease wrapped up this week, and all four episodes are now available for those who missed the live sessions or want to revisit the discussions. The series brought together leading international experts to tackle the real challenges in diagnosing and treating inherited neuropathies – from cutting-edge genetic testing to the latest clinical trial developments. […]
January is Charcot-Marie-Tooth Education Month PRESENTERS: Prof. Mary Reilly (University College London, Department of Neuromuscular Diseases, UK) Mary M. Reilly graduated from University College Dublin in 1986, received her MD in 1996, FRCP in 2002 and FRCPI in 2003. She was appointed consultant neurologist at the National Hospital for Neurology and Neurosurgery in 1998 and a Professor of Neurology at UCL in 2010. […]
We’re delighted to invite you to a special CMTUK Conference in 2026, as we celebrate 40 years of supporting the CMT community! This milestone year brings together four decades of experience, progress, and compassion. Expect an inspiring day filled with the latest research updates, expert insights, and the sense of community that makes CMTUK conferences so meaningful. 📅 Date: 25 […]
January is Charcot-Marie-Tooth Education Month To mark this, a European online webinar series will take place throughout January, focusing on Charcot-Marie-Tooth disease. Recording now available thanks to the EURO-NMD YouTube channel: The sessions will feature expert speakers and the latest research insights, offering valuable learning opportunities for the CMT community and professionals alike. Every Thursday in January @ 3:00 PM (UK time) […]
Please note that the North East online meetings will now take place on the first Wednesday of each month at 9:30am, starting on Wednesday 4 February.Meeting invites will be sent out soon. Our CMTUK support groups offer a welcoming and supportive space for people affected by Charcot-Marie-Tooth (CMT) to connect, share experiences, and support one another.
January is Charcot-Marie-Tooth Education Month. To mark this, a European online webinar series will take place throughout January, focusing on Charcot-Marie-Tooth disease. The sessions will feature expert speakers and the latest research insights, offering valuable learning opportunities for the CMT community and professionals alike. Every Thursday in January @ 3:00 PM (UK time)💻 Online Find out more and register via […]
Hello and Season’s Greetings It has been a great pleasure to take the charity through 2025. CMTUK has had a good year overall, attended more events to raise awareness, grown in membership, held CMT Kids and CMT Big Kids weekends, launched the new website and now we are ready for the season’s festivities and a break! I hope you, your family and […]
The most meaningful gift you can offer extends beyond material items—it is the gift of progress, hope, and the possibility of treatments and a cure. Your support makes all the difference in helping us to fund research and education. Thanks to the kindness of members, we have been able to commit £40,000.00 to support the UK CMT register which will […]
The Neurological Alliance, joined by over 35 leading organisations including the Association of British Neurologists, British Paediatric Neurology Association, Royal College of Psychiatrists, and Parkinson’s UK are demanding the government tackle the growing crisis in neurological care in its upcoming 10-Year NHS Workforce Plan. In England today, at least one in six people is living with a neurological condition. These […]
New ComMenT Winter Issue 2025
Our Winter 2025 issue of ComMenT is available to all CMTUK members and it is packed with inspiring fundraising stories, voices from our youngest CMT Kids, research updates, and warm wishes as we head towards the end of the year! If you are a member and you do not receive the email, please check your spam or junk folder first. […]