CMT Kids & Big Kids
Who are CMT Kids?
Our CMT Kids (ages 11–17) and Big Kids (ages 18–30) communities are all about connection, fun, and empowerment. Whether you’re navigating school, exams, friendships, sports, or adult life with CMT, you’re never alone.
We provide a safe space to share experiences, ask questions, and celebrate achievements together. Through events, online groups, challenges, and our annual activity weekends, we help young people and young adults feel supported, inspired, and connected to others who truly understand.
Whether you’re 5, 25, or somewhere in between, CMT Kids is a place where you’ll find friendship, support, and loads of fun.
Follow us on social media @CMTKidsUK for updates, inspiration, and community stories.
Big Kids (18-30s)
Growing up with CMT?
Our Big Kids group is for young adults navigating uni, jobs, relationships, and independence – all with CMT in the mix.
We meet up, share experiences, and (most importantly) have a great time together!
What We Do
Accessible Activity Weekends and Day Trips
Climbing, canoeing, zip-lining, and more, all adapted so you can join in the adventure. Keep an eye out for our day trips across the UK, suitable for the whole family.
Online Meetups
Chat, share experiences, and connect with other young people who understand
Information and Advice
From tips on living with CMT to just having a laugh with mates, we’re here for you.
We know that young people with CMT often rely on a network of parents, carers, and teachers. Our support section includes resources and guidance to help them understand and manage CMT effectively.
Support for Parents
Advice on daily life, managing appointments, navigating benefits, and emotional support.
Support for Carers
Guidance on caring for someone with CMT, managing mobility needs, and staying informed about new treatments or research.
Support for Teachers
Tips and tools for adapting lessons, supporting physical needs, and creating an inclusive learning environment.
CMT Kids UK
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Did you know that one of the most powerful ways to support CMT research doesn’t cost a penny? 💡![]()
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Joining the UK CMT Register helps scientists understand more about how CMT affects people’s lives - and that knowledge is the key to developing better treatments and care!![]()
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It only takes a few minutes to sign up, but your contribution could help shape the future for everyone living with CMT 💙![]()
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🔗 Join the register today - redcap.idhs.ucl.ac.uk/surveys/index.php?s=DN44N9HM84NH7XN7![]()
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#cmtuk #charcotmarietoothdisease #cmtresearch #cmtregister #cmtawarenessmonth
For those living with CMT, staying active can be key to feeling your best and managing symptoms... ![]()
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Regular exercise, even in small amounts, helps control body weight, supports muscle strength, and improves balance and posture – all important when dealing with CMT’s challenges! ![]()
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Activities like walking, swimming, yoga, and cycling can be great choices - and the best part? ![]()
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You don’t need a gym to get moving! ![]()
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Even small changes, like stretching or walking a little further, can make a real difference 💪![]()
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Most importantly, listen to your body - find what feels good, stop if it hurts, and chat with your doctor or physio for more guidance ![]()
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At CMTUK, we’re here to support you every step of the way, drop us a message for more tips and advice ![]()
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#cmtawarenessmonth #cmtuk #charcotmarietoothdisease
Did you know that CMTUK have a helpline?![]()
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Whether you’re newly diagnosed or have been living with CMT for years, sometimes you just need someone to talk to...![]()
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Our friendly CMTUK Helpline is here for you, Monday to Friday, 9am - 2pm![]()
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If you have questions, need advice, or just want a listening ear, give us a ring on 0300 323 6316![]()
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We’re here to support you, no matter where you are on your CMT journey ![]()
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#cmtuk #cmtawarenessmonth #charcotmarietoothdisease #disability #helpline
To many, it’s just a lift...![]()
But to someone living with CMT, it’s a lifeline!![]()
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CMT affects the nerves that control movement and sensation, which can make climbing stairs or walking long distances extremely difficult![]()
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Whilst many symptoms aren’t visible, their impact is very real![]()
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This CMT Awareness Month, we’re shining a light on the hidden challenges faced by people with CMT - because there’s always #MoreThanYouCanSee ![]()
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Learn more about CMT and how you can help us raise awareness: cmt.org.uk![]()
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#cmtawarenessmonth #disabilityawareness #charcotmarietoothdisease #cmtuk #accessibility
Meet our CMT Kids & Big Kids! ![]()
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Growing up with CMT can be a lot - but it’s much easier when you’re surrounded by people who get it![]()
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That’s what our CMT Kids and Big Kids (18–30) groups are all about!![]()
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Real friendships, real laughs, and real support, from people who understand what life with CMT is actually like![]()
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From accessible activity weekends and family day trips to fun online catch-ups, everything’s designed so no one’s left out ![]()
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If you (or someone you know) are living with CMT, come join the gang - we promise you’ll fit right in![]()
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👉 Find out more: cmt.org.uk![]()
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#CMTUK #cmtkids #cmtawarenessmonth #charcotmarietoothdisease #morethanyoucansee
Discover more
About CMTUK
Discover who we are, what CMTUK stands for, and how we support people living with Charcot-Marie-Tooth across the UK.
Research
Explore the latest CMT research, clinical trials, and how we’re driving progress toward better treatments and understanding.
Members
Join our community for access to resources, support networks, events, and exclusive member benefits — all on a donation basis.
Your support keeps CMTUK going
CMTUK is a donation-based charity. We don’t receive government funding – everything we do is made possible thanks to the generosity of our community. Every pound helps us provide vital support, raise awareness, and fund research for people living with Charcot-Marie-Tooth disease.