CMT Kids & Big Kids
Who are CMT Kids?
Our CMT Kids (ages 11–17) and Big Kids (ages 18–30) communities are all about connection, fun, and empowerment. Whether you’re navigating school, exams, friendships, sports, or adult life with CMT, you’re never alone.
We provide a safe space to share experiences, ask questions, and celebrate achievements together. Through events, online groups, challenges, and our annual activity weekends, we help young people and young adults feel supported, inspired, and connected to others who truly understand.
Whether you’re 5, 25, or somewhere in between, CMT Kids is a place where you’ll find friendship, support, and loads of fun.
Follow us on social media @CMTKidsUK for updates, inspiration, and community stories.
Big Kids (18-30s)
Growing up with CMT?
Our Big Kids group is for young adults navigating uni, jobs, relationships, and independence – all with CMT in the mix.
We meet up, share experiences, and (most importantly) have a great time together!
What We Do
Accessible Activity Weekends and Day Trips
Climbing, canoeing, zip-lining, and more, all adapted so you can join in the adventure. Keep an eye out for our day trips across the UK, suitable for the whole family.
Online Meetups
Chat, share experiences, and connect with other young people who understand
Information and Advice
From tips on living with CMT to just having a laugh with mates, we’re here for you.
We know that young people with CMT often rely on a network of parents, carers, and teachers. Our support section includes resources and guidance to help them understand and manage CMT effectively.
Support for Parents
Advice on daily life, managing appointments, navigating benefits, and emotional support.
Support for Carers
Guidance on caring for someone with CMT, managing mobility needs, and staying informed about new treatments or research.
Support for Teachers
Tips and tools for adapting lessons, supporting physical needs, and creating an inclusive learning environment.
CMT Kids UK
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What a weekend! ![]()
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From 7th to 10th November we spent our sold-out Big Kids Weekend at the amazing Bendrigg Trust in the Lake District, and it was exactly the adventure we all needed![]()
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We squeezed in so much - indoor caving, climbing, abseiling, zip lining, canoeing, archery and plenty of trips down the tube slide!![]()
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There was laughter, encouragement and everyone giving things a go in their own way![]()
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And of course, the best bits included the quieter moments too… good food, new friends, late-night cards and chats with people who genuinely get what life with CMT is like![]()
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One of our group said it best:![]()
“100% would recommend the weekend to others, it’s an amazing way to meet new people. My favourite part was seeing the confidence everyone had grown by the end of the trip.”![]()
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Sam, Sophie and Vicky are already planning online meet ups, family days out, our younger kids weekend and even more Big Kids activities for 2026 so keep an eye on our Facebook page for more updates and event bookings![]()
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Ideas, questions or something you’d love to see next? Email us at cmtkids@cmt.org.uk
We’ve just got back from our sold-out Big Kids Weekend – and what an incredible few days it was! ![]()
So many laughs, new friendships, and unforgettable moments 💙![]()
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We’re already planning what’s next for CMT Kids in 2026 – with online games nights, family day trips, and more activity weekends coming up…![]()
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But after such a popular event, we’d love to know what works best for you! 👇![]()
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💬 When’s the best time of year for events?![]()
📍 Where would you love to go?![]()
🎯 What kinds of activities and events would you or your young people enjoy most?![]()
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We’re thinking about running our next 11–17s weekend at the amazing Bendrigg Trust Centre in the Lake District from Friday 23rd - Monday 26th October, to line up with half-term – but before we confirm, we want to make sure it works for everyone![]()
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Please comment below, message us, or email cmtkids@cmt.org.uk with your thoughts – your feedback really helps shape what we do!
And we’re off!![]()
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Our leaders are on their way to the gorgeous Lake District, ready to welcome our Big Kids tomorrow 🎉![]()
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We can’t wait for the weekend to start - keep an eye out for lots of pictures and videos 👀![]()
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#cmtuk #cmtkids #charcotmarietooth
As CMT Awareness Month comes to a close, we just want to say a huge THANK YOU to everyone who’s helped shine a light on Charcot-Marie-Tooth disease this October!![]()
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From sharing posts, fundraising, and telling your stories - you’ve made a real difference 💪![]()
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But whilst the month may be ending, awareness can’t stop here...![]()
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People living with CMT need understanding, research, and support all year round! ![]()
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Let’s keep the conversations going - because together, we can make sure no one faces CMT alone 💙![]()
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Find out more and stay involved: cmt.org.uk![]()
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#cmtawarenessmonth #cmtuk #charcotmarietooth #disabilityawareness #morethanyoucansee
Discover more
About CMTUK
Discover who we are, what CMTUK stands for, and how we support people living with Charcot-Marie-Tooth across the UK.
Research
Explore the latest CMT research, clinical trials, and how we’re driving progress toward better treatments and understanding.
Members
Join our community for access to resources, support networks, events, and exclusive member benefits — all on a donation basis.
Your support keeps CMTUK going
CMTUK is a donation-based charity. We don’t receive government funding – everything we do is made possible thanks to the generosity of our community. Every pound helps us provide vital support, raise awareness, and fund research for people living with Charcot-Marie-Tooth disease.