CMT Kids & Big Kids
Who are CMT Kids?
Our CMT Kids (ages 11–17) and Big Kids (ages 18–30) communities are all about connection, fun, and empowerment. Whether you’re navigating school, exams, friendships, sports, or adult life with CMT, you’re never alone.
We provide a safe space to share experiences, ask questions, and celebrate achievements together. Through events, online groups, challenges, and our annual activity weekends, we help young people and young adults feel supported, inspired, and connected to others who truly understand.
Whether you’re 5, 25, or somewhere in between, CMT Kids is a place where you’ll find friendship, support, and loads of fun.
Follow us on social media @CMTKidsUK for updates, inspiration, and community stories.
Big Kids (18-30s)
Growing up with CMT?
Our Big Kids group is for young adults navigating uni, jobs, relationships, and independence – all with CMT in the mix.
We meet up, share experiences, and (most importantly) have a great time together!
What We Do
Accessible Activity Weekends and Day Trips
Climbing, canoeing, zip-lining, and more, all adapted so you can join in the adventure. Keep an eye out for our day trips across the UK, suitable for the whole family.
Online Meetups
Chat, share experiences, and connect with other young people who understand
Information and Advice
From tips on living with CMT to just having a laugh with mates, we’re here for you.
We know that young people with CMT often rely on a network of parents, carers, and teachers. Our support section includes resources and guidance to help them understand and manage CMT effectively.
Support for Parents
Advice on daily life, managing appointments, navigating benefits, and emotional support.
Support for Carers
Guidance on caring for someone with CMT, managing mobility needs, and staying informed about new treatments or research.
Support for Teachers
Tips and tools for adapting lessons, supporting physical needs, and creating an inclusive learning environment.
CMT Kids UK
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Did you know that CMT affects the peripheral nerves, which can mean muscles become weaker over time, and feeling can become reduced too![]()
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For kids and young people with CMT, this can show up in lots of everyday ways, from tired legs to tricky buttons or laces![]()
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Everyone’s experience is different, and that’s why understanding and awareness really matter!
Our Christmas Catch Ups are nearly here!![]()
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Join us next week for chats, laughs, and a festive-themed quiz 🎉![]()
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It’s a great opportunity to have fun together, meet our leaders, get to know our CMT Kids, and ask any questions you may have!![]()
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💻 - We’ll be meeting on Zoom and will share the link on Friday, in the comments ![]()
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📆 - Friday 19th December, 2025![]()
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⏰ - Under 18s (and families welcome!) - 7:00 to 8:00pm![]()
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🕗 18-30s (Big Kids) - 8:15 to 9:15pm![]()
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We can’t wait! See you next week!
Our CMT Kids 2025 wrapped is here!![]()
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We’ve had an amazing year together and can’t wait to share our even bigger and better plans for 2026 🙌![]()
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A huge thank you to everyone who has supported us! And we’re not finished yet…![]()
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Keep an eye out for our upcoming Christmas zoom calls - one for the whole family, and a dedicated 18+ call 👀![]()
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#charcotmarietoothdisease #cmt #cmtuk #cmtkids #wrapped
Discover more
About CMTUK
Discover who we are, what CMTUK stands for, and how we support people living with Charcot-Marie-Tooth across the UK.
Research
Explore the latest CMT research, clinical trials, and how we’re driving progress toward better treatments and understanding.
Members
Join our community for access to resources, support networks, events, and exclusive member benefits — all on a donation basis.
Your support keeps CMTUK going
CMTUK is a donation-based charity. We don’t receive government funding – everything we do is made possible thanks to the generosity of our community. Every pound helps us provide vital support, raise awareness, and fund research for people living with Charcot-Marie-Tooth disease.