CMT Kids & Big Kids
Who are CMT Kids?
Our CMT Kids (ages 11–17) and Big Kids (ages 18–30) communities are all about connection, fun, and empowerment. Whether you’re navigating school, exams, friendships, sports, or adult life with CMT, you’re never alone.
We provide a safe space to share experiences, ask questions, and celebrate achievements together. Through events, online groups, challenges, and our annual activity weekends, we help young people and young adults feel supported, inspired, and connected to others who truly understand.
Whether you’re 5, 25, or somewhere in between, CMT Kids is a place where you’ll find friendship, support, and loads of fun.
Follow us on social media @CMTKidsUK for updates, inspiration, and community stories.
Big Kids (18-30s)
Growing up with CMT?
Our Big Kids group is for young adults navigating uni, jobs, relationships, and independence – all with CMT in the mix.
We meet up, share experiences, and (most importantly) have a great time together!
What We Do
Accessible Activity Weekends and Day Trips
Climbing, canoeing, zip-lining, and more, all adapted so you can join in the adventure. Keep an eye out for our day trips across the UK, suitable for the whole family.
Online Meetups
Chat, share experiences, and connect with other young people who understand
Information and Advice
From tips on living with CMT to just having a laugh with mates, we’re here for you.
We know that young people with CMT often rely on a network of parents, carers, and teachers. Our support section includes resources and guidance to help them understand and manage CMT effectively.
Support for Parents
Advice on daily life, managing appointments, navigating benefits, and emotional support.
Support for Carers
Guidance on caring for someone with CMT, managing mobility needs, and staying informed about new treatments or research.
Support for Teachers
Tips and tools for adapting lessons, supporting physical needs, and creating an inclusive learning environment.
CMT Kids UK
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Our board of trustees have been out and about donating, sharing, and getting their miles in for #MoveAMileADayInMay🧑🦽🕺👩🦼🚶♂️🚴♀️![]()
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Together, we’re moving to raise awareness and vital funds for CMT – and every step, roll or even dance move helps!![]()
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Here’s how you can get involved…![]()
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▪️Tag us and use #moveamileadayinmay to share your daily miles![]()
▪️Ask friends and family to sponsor your efforts![]()
▪️Donate or share the fundraising link ![]()
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cmtunitedkingdom.enthuse.com/pf/mamadim26![]()
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Even the smallest donation makes a HUGE difference, and spreading the word helps more than you know ✨![]()
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#charcotmarietoothdisease #cmt #cmtuk #cmtkids #disabilityawareness #fundraisingchallenge
Today’s the day!![]()
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#MoveAMileADayInMay has officially started 🙌![]()
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We’re challenging ourselves to move 1 mile, every single day in May (which is no mean feat for those with CMT), and we’d LOVE for you to join in too! ![]()
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Whether you’re walking, wheeling, skipping, running, or even driving your mile, it all counts🧑🦽🕺👩🦼🚶♂️🚴♀️![]()
![]()
Here’s how you can get involved…![]()
![]()
▪️Tag us and use #moveamileadayinmay to share your daily miles![]()
▪️Ask friends and family to sponsor your efforts![]()
▪️Donate or share the fundraising link ![]()
![]()
cmtunitedkingdom.enthuse.com/pf/mamadim26![]()
![]()
Even the smallest donation makes a HUGE difference, and spreading the word helps more than you know!![]()
![]()
#cmtuk #charcotmarietooth #cmtkids #fudraisingchallenge #disabilityawareness
Move A Mile-A-Day In May is back for 2026 🎉![]()
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We’re challenging ourselves to move 1 mile, every single day in May, and we’d LOVE for you to join in too! ![]()
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This will be our 4th year completing the challenge, and what better way to celebrate our charity’s 40th anniversary 💙![]()
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Whether you’re walking, wheeling, skipping, running, or even driving your mile, it all counts🧑🦽🕺👩🦼🚶♂️🚴♀️![]()
![]()
Together, we’re moving to raise awareness and vital funds for CMT – and every step, roll or even dance move helps!![]()
![]()
Here’s how you can get involved…![]()
![]()
▪️Tag us and use #moveamileadayinmay to share your daily miles![]()
▪️Ask friends and family to sponsor your efforts![]()
▪️Donate or share the fundraising link ![]()
![]()
cmtunitedkingdom.enthuse.com/pf/mamadim26![]()
![]()
Even the smallest donation makes a HUGE difference, and spreading the word helps more than you know ✨![]()
![]()
Ready to get moving? Let’s do this!![]()
![]()
#charcotmarietoothdisease #cmt #cmtuk #cmtkids #disabilityawareness #fundraisingchallenge
We have a very exciting announcement to make…![]()
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Take a look at our upcoming, in-person events for the rest of 2026 🥳![]()
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From exciting day trips to our annual activity weekends, make sure you save the dates!![]()
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Booking via our new, online registration system will go live over the next few weeks, so keep an eye out for our next announcements 👀![]()
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We’d love to have you join us!![]()
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#charcotmarietoothdisease #activityweekend #cmtuk #cmtkids
We had the best time at the CMTUK annual conference on Saturday!![]()
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It was great to get together, hear about the latest healthcare and research updates, see so many young people in the room, and hear from our CMT Kids team 🙌![]()
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#charcotmarietoothdisease #cmtuk #cmtkids
Discover more
About CMTUK
Discover who we are, what CMTUK stands for, and how we support people living with Charcot-Marie-Tooth across the UK.
Research
Explore the latest CMT research, clinical trials, and how we’re driving progress toward better treatments and understanding.
Members
Join our community for access to resources, support networks, events, and exclusive member benefits — all on a donation basis.
Your support keeps CMTUK going
CMTUK is a donation-based charity. We don’t receive government funding – everything we do is made possible thanks to the generosity of our community. Every pound helps us provide vital support, raise awareness, and fund research for people living with Charcot-Marie-Tooth disease.