CMT Kids & Big Kids
Who are CMT Kids?
Our CMT Kids (ages 11–17) and Big Kids (ages 18–30) communities are all about connection, fun, and empowerment. Whether you’re navigating school, exams, friendships, sports, or adult life with CMT, you’re never alone.
We provide a safe space to share experiences, ask questions, and celebrate achievements together. Through events, online groups, challenges, and our annual activity weekends, we help young people and young adults feel supported, inspired, and connected to others who truly understand.
Whether you’re 5, 25, or somewhere in between, CMT Kids is a place where you’ll find friendship, support, and loads of fun.
Follow us on social media @CMTKidsUK for updates, inspiration, and community stories.
Big Kids (18-30s)
Growing up with CMT?
Our Big Kids group is for young adults navigating uni, jobs, relationships, and independence – all with CMT in the mix.
We meet up, share experiences, and (most importantly) have a great time together!
What We Do
Accessible Activity Weekends and Day Trips
Climbing, canoeing, zip-lining, and more, all adapted so you can join in the adventure. Keep an eye out for our day trips across the UK, suitable for the whole family.
Online Meetups
Chat, share experiences, and connect with other young people who understand
Information and Advice
From tips on living with CMT to just having a laugh with mates, we’re here for you.
We know that young people with CMT often rely on a network of parents, carers, and teachers. Our support section includes resources and guidance to help them understand and manage CMT effectively.
Support for Parents
Advice on daily life, managing appointments, navigating benefits, and emotional support.
Support for Carers
Guidance on caring for someone with CMT, managing mobility needs, and staying informed about new treatments or research.
Support for Teachers
Tips and tools for adapting lessons, supporting physical needs, and creating an inclusive learning environment.
CMT Kids UK
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We had the best time at the CMTUK annual conference on Saturday!![]()
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It was great to get together, hear about the latest healthcare and research updates, see so many young people in the room, and hear from our CMT Kids team 🙌![]()
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#charcotmarietoothdisease #cmtuk #cmtkids
#MoveAMileADayInMay is BACK for 2026, as we challenge ourselves to raise much needed funds and awareness 🎉💪![]()
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We’re going to be moving 1 mile, every single day in May - and we’d love for you to join in too!![]()
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Whether you’re walking, wheeling, dancing, running, or even driving your mile, it all counts!![]()
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And if you’re taking part, don’t forget to grab your free printable fundraising pack - complete with posters to spread the word, a calendar to tick off your miles, and a thank you card for your support!![]()
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Just email enquiries@cmt.org.uk or cmtkids@cmt.org.uk and we’ll send it straight to your inbox!![]()
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Even the smallest donation makes a HUGE difference, and spreading the word helps more than you know 👀![]()
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(Head to cmtunitedkingdom.enthuse.com/pf/mamadim26 to donate and share)![]()
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Ready to get moving?![]()
Let’s do this!![]()
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#cmtuk #cmtkids #fundraising #disabilityawareness #charcotmarietooth
We had such a great time at our recent family day trip to the Cotswold Wildlife Park, but don’t just take our word for it…![]()
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Have a look at what some of our attendees had to say! 🙌![]()
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Will we see you at the next one?![]()
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A huge thank you to our volunteer, Sophia, for making such a fab video!![]()
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#charcotmarietoothdisease #cmtuk #cmtkids
Move A Mile-A-Day In May is back for 2026 🎉![]()
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We’re challenging ourselves to move 1 mile, every single day in May, and we’d LOVE for you to join in too! ![]()
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This will be our 4th year completing the challenge, and what better way to celebrate our charity’s 40th anniversary 💙![]()
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Whether you’re walking, wheeling, skipping, running, or even driving your mile, it all counts🧑🦽🕺👩🦼🚶♂️🚴♀️![]()
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Together, we’re moving to raise awareness and vital funds for CMT – and every step, roll or even dance move helps!![]()
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Here’s how you can get involved…![]()
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▪️Tag us and use #moveamileadayinmay to share your daily miles![]()
▪️Ask friends and family to sponsor your efforts![]()
▪️Donate or share the fundraising link ![]()
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cmtunitedkingdom.enthuse.com/pf/mamadim26![]()
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Even the smallest donation makes a HUGE difference, and spreading the word helps more than you know ✨![]()
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Ready to get moving? Let’s do this!![]()
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#cmtuk #charcotmarietooth #cmtkids #fudraisingchallenge #disabilityawareness
We’ve had a fantastic time on our first family day trip of 2026!![]()
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A huge thank you to everyone who joined us at Cotswold Wildlife Park 🥳![]()
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It was great to meet new families, catch up with friends, and get to know our growing community! ![]()
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Hope you had fun, and keep your eyes peeled for the next event 👀![]()
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#CMTKids #CMTUK #charcotmarietooth
Discover more
About CMTUK
Discover who we are, what CMTUK stands for, and how we support people living with Charcot-Marie-Tooth across the UK.
Research
Explore the latest CMT research, clinical trials, and how we’re driving progress toward better treatments and understanding.
Members
Join our community for access to resources, support networks, events, and exclusive member benefits — all on a donation basis.
Your support keeps CMTUK going
CMTUK is a donation-based charity. We don’t receive government funding – everything we do is made possible thanks to the generosity of our community. Every pound helps us provide vital support, raise awareness, and fund research for people living with Charcot-Marie-Tooth disease.