At CMTUK, we’re passionate about driving research forward and sharing knowledge that helps people with Charcot-Marie-Tooth live their best lives.
This page is where you’ll find updates on the latest studies, breakthroughs, and educational resources – all aimed at building a brighter future for everyone affected by CMT.
One of the most important ways you can support research is by joining the UK CMT Register. This register helps researchers understand how many people have CMT, what types they have, and how the condition affects daily life.
By signing up, you’ll be playing a vital role in advancing treatments, improving care, and getting us closer to a cure. It only takes a few minutes to complete the secure online form, and every single registration makes a difference.
We share updates from around the world on:
Check back regularly to stay informed about what’s happening in the CMT research community.
Understanding CMT is key to living well with it. We work with medical professionals and researchers to provide clear, practical information about:
We also create resources for schools, carers, and employers to help them support someone with CMT.
We welcome collaboration with researchers, pharmaceutical companies, and healthcare organisations working to improve the lives of people with CMT.
Partner with us to:
Discover who we are, what CMTUK stands for, and how we support people living with Charcot-Marie-Tooth across the UK.
CMTUK is a donation-based charity. We don’t receive government funding – everything we do is made possible thanks to the generosity of our community. Every pound helps us provide vital support, raise awareness, and fund research for people living with Charcot-Marie-Tooth disease.