This summer, we are getting the CMT family together for a proper day out. On Saturday 6th June 2026, we are heading to the Magna Science Adventure Centre and we want you there! It’s the perfect opportunity for children, young adults, and families living with CMT to get together, have some fun, explore, and spend time with people who truly […]
If you are living with Charcot-Marie-Tooth disease (CMT), you may notice changes in your mobility over time. Muscle weakness, balance difficulties and fatigue can all affect how confident and comfortable you feel when walking. For many people, a rollator can provide helpful support. However, choosing the right rollator is important as what works well for one person may not suit […]
Our 2024-2025 annual report covers our key activities and achievements over the past year, the impact we have made and a complete financial summary. We want to say a huge thank you to all of our supporters, donors and partners whose commitment and kindness makes our work possible every single day. Click below to read the full report.
The EURO-NMD Webinar Series on Charcot-Marie-Tooth Disease wrapped up this week, and all four episodes are now available for those who missed the live sessions or want to revisit the discussions. The series brought together leading international experts to tackle the real challenges in diagnosing and treating inherited neuropathies – from cutting-edge genetic testing to the latest clinical trial developments. […]
January is Charcot-Marie-Tooth Education Month PRESENTERS: Prof. Mary Reilly (University College London, Department of Neuromuscular Diseases, UK) Mary M. Reilly graduated from University College Dublin in 1986, received her MD in 1996, FRCP in 2002 and FRCPI in 2003. She was appointed consultant neurologist at the National Hospital for Neurology and Neurosurgery in 1998 and a Professor of Neurology at UCL in 2010. […]
We’re delighted to invite you to a special CMTUK Conference in 2026, as we celebrate 40 years of supporting the CMT community! This milestone year brings together four decades of experience, progress, and compassion. Expect an inspiring day filled with the latest research updates, expert insights, and the sense of community that makes CMTUK conferences so meaningful. 📅 Date: 25 […]
January is Charcot-Marie-Tooth Education Month To mark this, a European online webinar series will take place throughout January, focusing on Charcot-Marie-Tooth disease. Recording now available thanks to the EURO-NMD YouTube channel: The sessions will feature expert speakers and the latest research insights, offering valuable learning opportunities for the CMT community and professionals alike. Every Thursday in January @ 3:00 PM (UK time) […]
Please note that the North East online meetings will now take place on the first Wednesday of each month at 9:30am, starting on Wednesday 4 February.Meeting invites will be sent out soon. Our CMTUK support groups offer a welcoming and supportive space for people affected by Charcot-Marie-Tooth (CMT) to connect, share experiences, and support one another.
January is Charcot-Marie-Tooth Education Month. To mark this, a European online webinar series will take place throughout January, focusing on Charcot-Marie-Tooth disease. The sessions will feature expert speakers and the latest research insights, offering valuable learning opportunities for the CMT community and professionals alike. Every Thursday in January @ 3:00 PM (UK time)💻 Online Find out more and register via […]
New ComMenT Winter Issue 2025
Our Winter 2025 issue of ComMenT is available to all CMTUK members and it is packed with inspiring fundraising stories, voices from our youngest CMT Kids, research updates, and warm wishes as we head towards the end of the year! If you are a member and you do not receive the email, please check your spam or junk folder first. […]