Hello and Season’s Greetings It has been a great pleasure to take the charity through 2025. CMTUK has had a good year overall, attended more events to raise awareness, grown in membership, held CMT Kids and CMT Big Kids weekends, launched the new website and now we are ready for the season’s festivities and a break! I hope you, your family and […]
The most meaningful gift you can offer extends beyond material items—it is the gift of progress, hope, and the possibility of treatments and a cure. Your support makes all the difference in helping us to fund research and education. Thanks to the kindness of members, we have been able to commit £40,000.00 to support the UK CMT register which will […]
As CMT Awareness Month 2025 comes to a close, we want to take a moment to say a huge thank you. To everyone who shared a post, told their story, joined a conversation, organised a fundraiser, or simply took the time to learn more about Charcot-Marie-Tooth disease (CMT) – your support has meant the world. This year’s theme, More Than […]
CMTUK had the pleasure of speaking with Emma Lines, a successful model and influential figure in fashion and lifestyle. Emma, who lives with Charcot-Marie-Tooth disease Type 2 and uses a wheelchair, is breaking barriers in the fashion world and inspiring others to embrace their individuality. Finding strength through change Emma’s journey began with familiar CMT signs – “champagne bottle legs”, […]
Discover the invisible side of CMT this Awareness Month and support thousands living with Charcot-Marie-Tooth disease.
Meet the new CMT Kids leadership team! Sam, Sophie, and Vicky are leading the way to support young people with Charcot-Marie-Tooth disease.