We try to provide support for the Young People who have attended our Young People’s Weekends in person, or by phone, email or Facebook.
There is an active “CMT Kids” Facebook page, but this is a closed page, and your membership of it will need to be approved by Karin Rodgers – if you’d like to email her to explain your links with CMT and Charcot-Marie-Tooth UK, please email firstname.lastname@example.org
If you’re feeling down…
Having CMT and being young as well is really, really tough, and sometimes, you might need a little bit of extra support to assist you through your problems.
These organisations below all provide support to people under 18.
Anyone can contact Samaritans. They offer a safe place for you to talk any time you like, in your own way, no matter how old you are.
SupportLine offers confidential emotional support to children and young adults by telephone, email and post. They can also give you details of counsellors, agencies and support groups throughout the UK.
Lifetrain helps young people reach their potential through their work in youth centres, schools and in the community. They offer training and educational courses, providing young people with the skills and confidence to find their own solutions.
The Mix – essential support for under 25s
The UK’s leading support service for young people, The Mix is there for you to talk to online, on social media or on their free, confidential helpline.
0808 808 4994
National Youth Advocacy Service (NYAS)
NYAS is a rights-based charity operating across England and Wales for children, young people and adults. They offer a variety of services including a national advocacy helpline, and advocacy for children and young people with disabilities.
0808 808 1001
Teenage Helpline supports young adults and teenagers by providing advice and support on a variety of issues, online or via email. You can talk to a mentor at Teenage Helpline on any topic – all conversations are completely private.
Childline is a free, private and confidential service for anyone under 19 in the UK. You can talk to their trained counsellors about any issue you’re going through, anytime. On the phone, by email, or face-to-face – whatever feels best for you.
Tel: 0800 1111
Scope provides free, independent and impartial information and support on issues that matter to disabled people and their families.
Tel: 0808 800 3333
Can’t find what you’re looking for? Get in touch