We provide support for young people with CMT.

There is an active CMT Kids Facebook page, your membership of it will need to be approved – if you’d like to email her to request access:


If you’re feeling down…

Having CMT and being young as well is really, really tough, and sometimes, you might need a little bit of extra support to assist you through your problems.

These organisations below all provide support to people under 18.


Anyone can contact Samaritans. They offer a safe place for you to talk any time you like, in your own way, no matter how old you are.
116 123


SupportLine offers confidential emotional support to children and young adults by telephone, email and post. They can also give you details of counsellors, agencies and support groups throughout the UK.
01708 765200

Lifetrain Trust

Lifetrain helps young people reach their potential through their work in youth centres, schools and in the community. They offer training and educational courses, providing young people with the skills and confidence to find their own solutions.
01372 360875

The Mix – essential support for under 25s

The UK’s leading support service for young people, The Mix is there for you to talk to online, on social media or on their free, confidential helpline.
0808 808 4994

National Youth Advocacy Service (NYAS)

NYAS is a rights-based charity operating across England and Wales for children, young people and adults. They offer a variety of services including a national advocacy helpline, and advocacy for children and young people with disabilities.
0808 808 1001

Teenage Helpline

Teenage Helpline supports young adults and teenagers by providing advice and support on a variety of issues, online or via email. You can talk to a mentor at Teenage Helpline on any topic – all conversations are completely private.


Childline is a free, private and confidential service for anyone under 19 in the UK. You can talk to their trained counsellors about any issue you’re going through, anytime. On the phone, by email, or face-to-face – whatever feels best for you.
Tel: 0800 1111

Scope helpline

Scope provides free, independent and impartial information and support on issues that matter to disabled people and their families.
Tel: 0808 800 3333

Contact Charcot-Marie-Tooth UK today

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Last Updated: Friday 5th April, 2024