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Supporting Someone with CMT: A Guide for Carers

Carers Week 2026 was a timely reminder of just how many people across the UK are quietly caring for someone they love, without pay and often without enough support. Behind many people living with Charcot-Marie-Tooth disease, there is someone who shows up every day to help. A partner, a parent, a sibling, a close friend. Someone who has taken on […]

CMTUK Conference — 40 years Turning Knowledge into Support

25 April 2026 | Hilton Reading This year, we didn’t just come together to learn and connect, but to mark forty years of supporting people living with Charcot-Marie-Tooth disease across the UK. You could feel the weight of that milestone in the best possible way, in a room that brought together patients, families, clinicians, and researchers. For many attendees, this […]

CARERS Support Group Online Meeting

We are pleased to invite you to CMTUK Carers Support Group meeting on Thursday 29 January. This group is suitable for anyone who is a Carer, this might be a partner, a sibling, or a close friend caring for an adult with CMT. It’s a welcoming space to connect, share experiences, and support one another. Meeting Details: 📅  Date: Thursday, […]

PARENTS and GUARDIANS Support Group Online Meeting

You’re warmly invited to join the CMTUK Parents & Guardians Support Group meeting on Thursday 19 February 2026 @ 7.30 PM, held online via Zoom. This group is suitable for anyone who is a Parent or Guardian of children under the age of 18, living with CMT. It’s a welcoming space to connect, share experiences, and support one another.   Meeting […]