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News & Blogs

This is where you’ll find the latest news, inspiring community stories, and updates on everything we’re working on.

Looking for upcoming webinars, conferences, and local meetups? Want to read about fundraising events, awareness campaigns, or ways to leave a lasting legacy through giving? You’ll find it all here.

Whether you want to stay informed, get involved, or be inspired by others living with CMT, this is the place to start.

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Transforming Clinical Trials for Charcot-Marie-Tooth Disease
CMTUK supports new research to improve Charcot-Marie-Tooth disease trials, helping speed up treatment...
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Turning Wisdom Teeth into a Breakthrough for CMT and HNPP Studies
Support CMT and HNPP research by donating a wisdom tooth. Prof. Esther Wolfs’s team at Hasselt University...
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Augustine Therapeutics Doses First Patient in CMT Clinical Trial of AGT-100216
Augustine Therapeutics doses the first patient in Phase I trial of AGT-100216, a potential new treatment...
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Promising Results from Govorestat Trial for CMT-SORD Shared at PNS 2025
Applied Therapeutics shares promising 12-month Govorestat trial results for CMT-SORD at PNS 2025.
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CMT Awareness Month 2025 – More Than You Can See
Discover the invisible side of CMT this Awareness Month and support thousands living with Charcot-Marie-Tooth...
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Meet the New CMT Kids Leadership Team 
Meet the new CMT Kids leadership team! Sam, Sophie, and Vicky are leading the way to support young people...

Discover more

Research

Explore the latest CMT research, clinical trials, and how we’re driving progress toward better treatments and understanding.

CMT Kids

Find fun, safe spaces for children and young people with CMT to connect, share experiences, and build lifelong friendships.

Members

Join our community for access to resources, support networks, events, and exclusive member benefits — all on a donation basis.

Your support keeps CMTUK going

CMTUK is a donation-based charity. We don’t receive government funding – everything we do is made possible thanks to the generosity of our community. Every pound helps us provide vital support, raise awareness, and fund research for people living with Charcot-Marie-Tooth disease.

Together we can make a difference – please donate today.