HELP, MY FEET ARE SHRINKING! Lawyer raises awareness for CMT disease that’s seen her shoe size drop from 3 to 1.5
Symptoms of stumbling and balance problems led to people accusing the 29-year-old lawyer of being drunk.
Continue Reading
Symptoms of stumbling and balance problems led to people accusing the 29-year-old lawyer of being drunk.
Continue ReadingSeptember is the start of awareness month for Charcot Marie Tooth, a neurological disorder that affects around 23,000 people in […]
Continue ReadingTHROUGHOUT his childhood Colin Tyrie was always falling over, ripping his trousers, grazing his knees or spraining his ankles. Most […]
Continue ReadingINSPIRED by her brave loved ones, a Sale swimmer has taken the plunge to raise money for a charity which […]
Continue Reading
Muswell Hill campaigner making film to raise awareness of rare disease Doug Sager (centre) with volunteers taking part in the […]
Continue ReadingBioPontis Alliance for Rare Diseases today announces receipt of a large three year donation from the prestigious Baillet Latour Fund […]
Continue ReadingImportant implications for experimental trials in Neuromuscular Diseases 9 November 2015 – http://www.ucl.ac.uk/ion/articles/news/20151106 A UCL Institute of Neurology study published […]
Continue ReadingA determined teenager from Saffron Walden is defying a rare, inherited neurological disease by taking part in 10 triathlons this […]
Continue ReadingA KINCARDINE mum who was diagnosed with the rare Charcot-Marie-Tooth disease is raising awareness of the incurable condition. Susan Wallace, […]
Continue ReadingA student achieved a lifelong dream this week when he began his course at the University of East Anglia despite […]
Continue ReadingLast Updated: Monday 30th October, 2017