Charcot-Marie-Tooth UK is run  by four part-time members of staff, together with the Board of Trustees, the majority of whom have CMT themselves. Under our Articles of Association, we can have up to 10 Trustees and skilled observers as we deem necessary.

It is always useful to have people as Trustees who have specific skills – these vary, but financial experience is always handy, and of course, fundraising is essential to any charity.

Who can stand as a Trustee?

Anyone can become a Trustee – under the new Articles of Association, you do not need to be a member.  You also do not necessarily need to have CMT to be a Trustee, although we always aim that the majority of the Board of Trustees shall have the condition.

Apart from that, you must be over 18, and subject to various restrictions – see the application form below for details.

What would I have to do?

You need to be prepared to attend up to four Trustee meetings per year (three planned for 2018), currently held in February, June and October.  Meetings are often held at the Hilton Coventry, just near junction 2 of the M6, or at the CMT office in Christchurch (Hants.).

Travelling expenses and accommodation/ subsistence are paid for by the organisation.  Meetings are held over one day, starting at 10.30am and finishing by 5pm, to save costs, with the occasional weekend meeting. We will, of course, arrange accommodation if it’s physically too far for you to travel to the meetings in a day.

In addition, you are expected to attend the Annual General Meeting and Conference, and any other meetings that may be arranged.

If you are successful in your application, you would be elected for a term of three years, and no Trustee can serve more than two terms (ie, six years) except in exceptional circumstances.  These rules can be found in the Articles of Association.

Last Updated: Thursday 17th January, 2019