Charcot-Marie-Tooth UK is run  by four part-time members of staff, together with the Board of Trustees, the majority of whom have CMT themselves. Under our Articles of Association, we can have up to 10 Trustees and skilled observers as the board deems necessary.

It is always useful to have people as trustees who have specific skills – these vary, but financial experience is always handy, and of course, fundraising is essential to any charity.

Who can stand as a Trustee?

You do not need to have CMT to be a Trustee.

Apart from that, you must be over 18, and subject to various restrictions – see the application form below for details.

What do Trustees do?

You need to be prepared to attend up to four Trustee Meetings per year.

Information on what a Trustee does can be found here.

Meetings are often held in Coventry or at the CMT office in Christchurch, Dorset but could be in other parts of the UK. Travelling expenses and accommodation, if required, is paid for by the charity.  Meetings are usually held over one day, starting at 10.30am and finishing by 5pm.

In addition, you are expected to attend the Annual General Meeting and Conference, and occasional other meetings that may be arranged.

If you are successful in your application, you would be elected for a term of three years, and trustees can serve two consecutive terms (i.e. six years).  These rules can be found in the Articles of Association.

Last Updated: Wednesday 5th February, 2020