Who we are

Here you can find the team of people who make CMTUK work

The Staff – Based in the office in Christchurch on the south coast of England.

Patron – Professor Mary Reilly

Trustees – At least 50% of the board will have CMT or a related condition and those that haven’t will have an interest or family connection.

Advisors – Invited to support the board in its work, advisors do not have voting rights.

The Trustees welcome your emails, please note that Board members and advisors are volunteers not paid members of staff.

Volunteers – CMTUK encourage those that are able to and wish to volunteer to support the charity. Volunteers include our Regional Support Group Co-ordinators.

All working for you and to ensure that the organisation is run effectively and efficiently.

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Simon Bull

Chief Executive

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Paul Fleming


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Anton James

Advisor to the Board, Chair of Finance Committee

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Karin Rogers

Advisor to the Board & Youth Development Officer

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Sophie Arnold


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Richard Batchelor


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Thomas Henderson


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Kim Shires

Information Support Adviser

Lisa Yeates


Chris Smith


Denise James


Last Updated: Sunday 4th June, 2023