Pharnex PXT3003 study.
Pharnext have confirmed their latest study. The purpose of this study is to determine whether PXT3003 is effective and safe […]
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Pharnext have confirmed their latest study. The purpose of this study is to determine whether PXT3003 is effective and safe […]
Continue ReadingDue to the pandemic a number of the Regional Support Groups are meeting on-line and members are welcome to attend. […]
Continue ReadingPharnext provides an Update on its Pivotal Clinical DevelopmentProgramme in Charcot Marie Tooth Disease Type 1A (‘CMT1A’).
Continue ReadingTo mark Rare Disease Day 2021, we’re running a “Faces of CMT photography Competition”. We’re looking for a photograph with […]
Continue ReadingIt is with great sadness that I inform you that CMT UK learned today of the death of Doug Sager. […]
Continue ReadingPlease follow this link for the latest update from Queen Square Centre for Neuromuscular Diseases. COVID-19 Vaccination Update | Queen […]
Continue ReadingIf you haven’t completed the membership survey please do it now, it is important information for us, helping us analysis […]
Continue ReadingWe received the following statement from Professor Mary Reilly on 4th December 2020 regarding the COVID-19 Vaccine: All the information […]
Continue ReadingWe learned over the weekend of the sad death, aged 42, of Senegal and Premier League footballer Papa Bouba Diop. […]
Continue ReadingAs part of #CMTAwarenessMonth, Professor Mary M Reilly joined us for a Q&A session. Professor Reilly answered questions from the […]
Continue ReadingLast Updated: Tuesday 20th April, 2021